Citizen Health is the goal was to build a platform that allowed cancer patients seamless access to their data. When Nasha joined the company in 2018 and helped evolve its focus into rare disease, it became clear that this unique approach could unlock key clinical data and build a patient community that could fundamentally shift care for patients with rare diseases while accelerating cures.
"Our community has participated in multi-year, in-person Natural History Studies which take a toll on our patient population and their families. In six months, Citizen was able to create a natural history dataset that spanned over 15 years without patients ever having to leave their homes. An analysis of the data suggests that the Citizen natural history dataset has detailed a reliable disease progression, represents a wider range of individuals than in-person studies, and can benchmark comparisons in development and function to gene therapies and other disease-modifying treatments at regulatory standards."
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